Why raise money for sick kids? I mean sure, sick kids. That’s a pretty good standalone reason. But it is kind of a random thing to jump on board with. As I was examining my own motives the other day, I remembered when I was hospitalized with Crohn’s disease 7 years ago. Poo talk coming in the following retrospective; you are forewarned.
I was 17, had no medical snafus in my life (or even in my family) until I had 6 weeks of debilitating symptoms. For me, one of the worst symptoms I experience with Crohn’s disease is urgency. I don’t mind going to the bathroom a lot, and I don’t even mind if going to the bathroom is painful, but when I wake up multiple times a night to go to the bathroom, every night, for weeks on end, it starts to feel like your mind is fraying. On top of that, I was incredibly anemic so combined with little sleep, I remember parking my car and closing my eyes to sleep for five minutes before having to go in to school, and skipping classes just to sleep in my car, and getting home from classes and falling asleep on the couch every afternoon, waking up to eat, do whatever homework I needed to, then falling asleep again until the morning.
The breaking point was Memorial day weekend, and after a visit to an walk-in clinic, my parents made the executive decision to take me to the ER. When I got taken back to a room, I remember feeling isolated just looking at the arrangement. There was a single bed in the middle of the room. After some initial tests, the nurse told us that I’d be getting some more tests in the morning, and they needed to keep the IV in me over night. My parents left to get some sleep at our house, the nurses left, and I was alone on an island.
The treatment and care I got at the hospital was phenomenal, I don’t want to knock that. And to be fair, my disease is really minimal. I also had health insurance and my parents were equipped to take care of me. I cannot imagine the hurdles for more care-intensive illnesses, a worse condition, inadequate health insurance, or being any younger and having to deal with what happened.
I know that Primary Children’s hospital, the Children’s Miracle Network of hospitals, and Extra Life are making the first experiences for kids going to hospitals safe and comforting. I know these organizations are supporting family members and friends to feel empowered and like they can make it through some of the worst times of their lives, and the lives of those they love. I can’t imagine one of my nieces or nephews entering a hospital at any age and feeling isolated and alone, faced with a single bed in the middle of a stark white room. With support, facilities like Primary Children’s hospital will continue to operate and provide the reinforcements kids, families, and friends need in their darkest times.
That’s why I’m involved. That’s why, although I’d never do it for any other cause (and never have), I’m asking for your donations to help kids in their scariest times. If you could change your scariest childhood memory into something warm and kind, would you? We can do that for kids, with a few bucks, no minimum requirement.
Thanks for reading, and a huge thanks to those who have already donated. Don’t worry – the 24 hours of livestreaming gaming on October 25th will be a lot less heavy than this blog post 🙂